Big Bubbie Energy

I’m always amazed when we are in the hospital how quickly the tables can turn. In either direction. I’m constantly on guard because of that very reason. But right now it is all in the right direction. It can be hard for me to talk about things moving in a positive direction. Like a fellow medical mom friend of mine recently spoke, our long journey has me superstitious and constantly worried about when the other shoe will drop. So as I type this I keep my fingers crossed and my heart guarded. BUT, Milo is recovering amazingly. Dr. Smithers was very pleased with his esophagram results yesterday. Today Milo got his chest tube out, and the chest x-ray that followed was promising. Milo met with a speech therapist today and did some oral feeds. HE ATE FOOD BY MOUTH FOR THE FIRST TIME IN MONTHS. And with the chest tube gone I was able to take Milo and his IV pole for a walk. Getting him outside of his crib and moving around the unit felt amazing. We even sat in front of the window and watched the sail boats and I promised him we will get him out on a sail boat some day. Along with all the other experiences. All of them. And after our walk we enjoyed a couch and movie snuggle. It felt like normal baby mommy moments, well kind of. And it was special.

My heart is still guarded. I’m cautious of getting my hopes up. But I’m celebrating this win. Because my bubbie is amazing. He is so strong and never gives up. No matter what. And always with a smile.